So PERVADE got started out of conversations with a whole bunch of colleagues who just starting to work on ethics and big data. So it was emerging as a question in many places 6 to 10 years ago, at conferences like CSCW. And actually, the Consortium for Sociotechnical Studies has an annual summer camp and a group of us got together there and had some time and were given some resources to brainstorm about, what can we bring to this conversation about ethics? People were asking for guidelines, and people were asking for norms. And we realized there were empirical questions that were unanswered in this space around norms. And those included things like, what are data scientists actually doing? What are they doing to think through the ethics of their own work and their own projects? Are they going to their IRBs? Are they not? If so, why or why not? So there are questions about research practices. There are also questions about what users expect. What do the people who generate pervasive data think about having their data used in research? Do they expect to be asked for consent? Do they not? Does it matter what kind of data it is? Does it matter what platform they're on? And then we also didn't know much about how IRBs were regulating this data, if at all.So actually, some of the early work Jessica and I did was about IRB practices around this data.
So there were lots of people asking these questions and we thought, well, the best way to answer a bunch of these questions at once would be to have a collaboratory, to have a big group of people who could access similar data, who had different research skills, so survey researchers, and ethnographic researchers, and computer scientists doing measurements of risk. But we would all be in conversation with each other so that we could ask questions that move across all of these stakeholder groups, move across IRBs, users, and data scientists.
So that's how PERVADE came to be. The National Science Foundation provided us with quite a bit of funding to coordinate a six-campus project. And here we are six-ish years later, and we have answers to a lot of those questions.